It's Not as Bad as it Sounds

My Life with MS and Fibro

This is my story of what life has been like for me having Multiple Sclerosis and Fibromyalgia. In my book It's Not as Bad as it Sounds (my life with MS & Fibro), I go over what life has been like with these condition, and I do this by going over my upbringing and my life prior to, during and after diagnosis. I have also written It's Not as Bad as it Sounds for people seeking information on how to interact with others who have "invisible illnesses" like MS and Fibro.

 

 

 

 

 

 

Author Yvonne Decilis

Author Yvonne Decilis

 

Author Yvonne Decelis

Yvonne Decelis graduated and received a BA in Gerontology at the University of Massachusetts (UMass) Boston in December of 2012. She is now seeking her graduate degree in Masters of Aging Services at UMass Boston’s McCormack Graduate School of Policy and Global Studies. Yvonne’s “ultimate goal” is to be a Gerontologist who is directly involved in the management of programs that address Nutrition and/or Exercise for the elderly (and the disabled) population in an effort to teach them how to improve their quality of life with non-medicalized techniques whenever possible.

From Yvonne: My interest in the field of aging and disability is almost lifelong. I have always felt that we do not always treat older adults and/or members of the “disabled community” with the respect and kindness they deserve and I am hoping to help change that.

This is my story of what life has been like for me having Multiple Sclerosis and Fibromyalgia. In my book It's Not as Bad as it Sounds (my life with MS & Fibro), I go over what life has been like with these condition, and I do this by going over my upbringing and my life prior to, during and after diagnosis. I have also written It's Not as Bad as it Sounds for people seeking information on how to interact with others who have "invisible illnesses" like MS and Fibro.

As someone with health problems, I have discovered ways to improve my quality of life and I want to teach others how to do the same for themselves.

In the spring of 2012 I became one of our schools first members of the Commonwealth Diversity and Research Fellowship Program. For this program I did a semester-long Fellowship at the Massachusetts Statehouse’s Department of Veteran Services. In addition, I received a letter in the summer notifying me that I made the Dean’s list for the work I did in the spring semester of 2012. It was a very nice surprise and rewarding for me, especially after working with and for students for so long. It was nice to be on the “other end” of things for a change!

In addition to the work I have done as a student and an author, I volunteer for the Somerville-Cambridge Elder Services Center as a friendly visitor and medical advocate for Elder clients. I am also a “Medicare Part D” specialist and will soon be a fully trained “SHINE” counselor (to help people with their Medicare plans). I am also an advocate for people with Multiple Sclerosis and Fibromyalgia.

 

 

 

 

BOOK REVIEWS:

 

 

Excellent info for peope with MS and those who love them.

This is a very personal story that I believe can help those who are newly diagnosed and those who have had it for a while. It is also a book for the family and friends of people with MS. Kind of helps us understand what they are going through. I only wish I'd had a book like this when my daughter was first diagnosed.  -Jane B "jbcamel"

 

 See Myself in this Book.  This is an amazing read.

I too have MS and once thought to have Fibro which actually I do not. I see myself so much in Yvonne's journey and also we are very different. I love the snowflake analogy. Very difficult to diagnose but kind of a relief or maybe to some a death sentence (MS doesn't kill you) when you do. It's a must read for anyone who has MS and Fibro or vice versa or if you know anyone going through either one or both. Thanks so much Yvonne!  -Deborah Ramsey

Well done

My sister-in-law has both these conditions and this book is very informative and helpful in my coming to understand her and these conditions which play such a large part of her life. Thank you, Yvonne, for sharing your experiences. The tips and helps are good, too. If I know more about it, maybe I might be able to suggest some of them to her at an appropriate time. Good book if you are interested in these conditions or know someone who does.  -DS

 

5 starsHope and Determination

This incredible lady has a wonderful life story to share of inspiration and hope for MS & Fibro Sufferers worldwide.

Her links are very useful that she had included in her book to help the people get help and learn more of these terrible diseases.
through her eye you learn that there is always hope and her determination is wonderful to read.
I admire this lady greatly.
Thank you for sharing your story.  by Chicca Diaram

Orion Diaram (Haverhill, UK) 

 5 starsSee Myself in this Book

This is an amazing read. I too have MS and once thought to have Fibro which actually I do not. I see myself so much in Yvonne's journey and also we are very different. I love the snowflake analogy. Very difficult to diagnose but kind of a relief or maybe to some a death sentence (MS doesn't kill you) when you do. It's a must read for anyone who has MS and Fibro or vice versa or if you know anyone going through either one or both. Thanks so much Yvonne!  Deborah Ramsey

 

 

 

 

 

 

AUTHOR'S INTERVIEWS


Hit Counter provided by technology news